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Tracy
Copeland
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February
2, 1998 seemed like a normal day, started like a normal day; that
is, until I looked in the mirror. The whites of my eyes were no
longer white, but had an unattractive yellow glow. Something was
not quite right. My stomach had been irritated lately, but I
attributed it to stress; you know, the familiar stuff, holidays,
end of the year, end of the month, the impending audit. It turned
out to be a little more complicated than stress.
The month of February brought many doctor visits, sonograms, and
blood tests. My eyes became brighter than the newly introduced VW
Bug, and my skin was changing color. As my condition worsened, the
answers seemed to get farther away. On March 6, 1998, I had an
appointment with a hepatologist that traveled to Reno from
Stanford University in California. She informed me only that I
needed to board a plane and be in San Jose, California, the
following morning for a liver biopsy. She had already checked
flight information and had a room waiting for me at the hospital.
That was a Friday afternoon, slightly longer than a month after my
initial doctor visit. After leaving the doctor's office, I
returned to work, put a few (a very few) things in order and
boarded a plane with my husband. Over the weekend my condition
deteriorated rapidly. By Monday morning I had slipped into a coma.
I suffered from "fulminant liver failure of unknown
etiology", (unknown complete liver failure). Without a liver
transplant, my days were now hours and the hours were few. My
family and friends had nothing to do but wait and pray. The
following Wednesday morning, my family received news that they had
found a matching liver, and by God's grace, I received the most
precious gift, life. I believe I am truly blessed; one of the
fortunate.
This waiting list includes kidney, liver, pancreas, heart and lung
organs. Every fourteen minutes another name is added to the list.
In the year ending June 30, 2001, there were 23,407 transplants
performed, less than one third of those on the list. While some
will receive this precious gift of life, a staggering number will
die while waiting.
So, you ask, "how does one get on the list?" and
"how did Tracy get in front of them?"
The
United Network for Organ Sharing (UNOS) coordinates the nation*s
Organ Procurement and Transplantation Network (OPTN) under
contract with the US Department of Health and Human Service. Under
the guidelines set forth by the OPTN, transplant programs decide
whether to accept an individual patient for transplant based
primarily on medical criteria. Also included in the decision
making process, is the likelihood of a patient's survival and the
consideration of a patient's willingness to comply with long term
medication requirements to prevent rejection. Social criteria such
as celebrity status and wealth are excluded from consideration.
More specifically, regarding adult liver transplants, patients are
then categorized by medical necessity. There are four categories
of liver transplant patients, Status 1, 2A, 2B and 3. Status 1
patients are the most critical. They either suffer from fulminant
(sudden) liver failure or their newly transplanted liver does not
function. These patients have a life expectancy of less than seven
days without a liver transplant. My condition put me immediately
into this category. Status 2A patients are those who typically
have chronic liver disease and are in the hospital's critical care
unit with a life expectancy of less than seven days as determined
by the objective and subjective medical criteria. Status 2B
patients generally have chronic liver disease and are becoming
more urgently in need of a transplant, but do not meet the
criteria for Status 2A. Status 3 patients are under continuous
medical care, but are not in the hospital, except for short stays.
How come there are so many on the waiting list and so few
transplants performed? Most believe it is primarily due to
misinformation and/or a lack of information. A most disturbing
fact is that less than one-half of the families of potential organ
donors will consent to donation. Some of these people are not
aware that becoming an organ donor will not affect medical
treatment, there is no age limit for organ donation, and most
religions support the donation of organs.
If you have already made the decision to be an organ donor,
personally, I thank you and implore you to discuss your decision
with your family, friends or your physician. Make sure that
whoever you have designated to make such decisions for you is
aware and will honor your wishes. Please be aware, that simply
signing the back of your driver's license is not enough. If you
have not yet made a decision, I would like to encourage you to
consider organ donation and the opportunity to provide the gift of
life to someone in need. I believe you will be blessed by this
decision. I have met and developed a loving, life-long friendship
with my donor's family. On March 12, 1998, my family grew by five.
My donor, Terry Snow, his parents, Kathy and John, and his sister
and her husband, Lynn and Eric. Terry was in a motorcycle accident
on March 2, 1998. After two operations and many days in a coma,
his family made the difficult decision to remove him from life
support. If not for the loss the Snow's suffered and for their
willingness to bless others in spite of it, Terry's heart
recipient, lung recipient, kidney recipient and I, the liver
recipient, may not be alive today. Kathy, a registered nurse at
the time of her son's death, is now a transplant coordinator in
Southern California. This family, my family, will always have a
special place in my heart.
Finally,
I would like to share an awesome opportunity I have to celebrate
this gift of life and to demonstrate that there truly is life
after transplant.
In June 2002, I will be competing as a cyclist in the transplant
games at Disney's Wide World of Sports Complex in Florida. The
purposes of these games are many. For one, to demonstrate the
life-restoring achievements of organ transplantation and to
contribute to continued success. To involve the entire transplant
community including doctors, recipients, families and related
organizations and professionals in a collaborative effort for the
benefit of organ donation. To recognize and honor donors and their
families, and most importantly, to call attention to the need for
organ and tissue donations. I am very excited to be a part of Team
Nevada in this Olympic-style event. If you will be in Orlando the
last week of June, I would like to invite you to become a part of
this incredible event. Each team is required to raise funds for
uniforms, travel expenses, etc. If you would like to support Team
Nevada, please contact me at glen@aies.net or by mail at Tracy
Copeland, 3535 Vista Blvd., Sparks, Nevada, 89436.
Thank you for taking the time to read my story. I hope in some way
it has blessed you and has inspired you to consider blessing
another with the most precious gift, the gift of life.
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