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Jessica
Drossulis
Jessica
Drossulis with bronze medalist
and liver recipient Chris Klug |
Thousands
Wait for a Call of Life
By Gregory Crofton
Tahoe Daily Tribune
April 14, 2003
More
than 300 Nevadans and 8,000 Northern Californians are on organ and
tissue transplant lists, The wait, which can be years, can also be
fatal.
Only when a patient becomes extremely ill does he move to the top
of the list.
Jessica Drossulis, 15, of Sparks, has been waiting for a liver for
more than two years.
She
has auto-immune hepatitis, a disease that began affecting her when
she was 10. It's difficult for Jessica to get out of bed, let
alone get up at 5:30 a.m. to go to Heavenly Ski Resort to
snowboard alongside an Olympian. But that's what she did Friday.
Chris
Klug, winner of a bronze medal for giant slalom snowboarding in
2002, signed posters for Jessica and about 30 others who have had
a transplant or need one. Klug spent the rest of the day
snowboarding with the members of the group as part of fund-raiser
for the Sierra Eye & Tissue Donor Services.
Klug had a liver transplant in July 2000. His story of recovery
from the rare liver disease primary sclerosing cholangitis, the
disease football great Walter Payton did from, was well-documented
at the Salt Lake City Winter Olympics. But still he is willing to
keep sharing it.
"We'll
talk," said Klug, beaming confidence into the eyes of
Jessica. Klug promised to share insights about transplant
procedures with Jessica once they were on the slopes.
Jessica
says she is scared of what will be a 12- to 14-hour operation,
recovery from which takes more than a month.
"It
can be scary ... but she's in good hands at Stanford," Klug
said. "I know some of the doctors there."
Jessica
hopes to get a liver but the wait is difficult, especially because
Nevada has no transplant center. The closest centers are in San
Francisco and Stanford.
To
lessen the burden, Jessica's father, Kim, is willing to take the
ultimate step. The 46-year-old is ready to split his liver with
his daughter. The problem is doctors say his daughter is not sick
enough to warrant an operation on him or her.
"That's
the point -- that's how desperate we are for organs," said
Susan Drossulis, Jessica's mother. "That we are willing to
endanger people's lives for them."
Hope
lies in the operation, whenever it comes. Her mother, a nurse who
cares for cancer patients, wants Jessica to prepare for surgery as
early as this summer. But Jessica is scared.
When
her mother describes what the operation would involve, Jessica
looks away.
Her
joints are stiff and they hurt. She takes 20 pills a day. She's
pale and tired, but she is still well enough to dance five days a
week and is not in enough pain to be anxious for the operation.
"Almost
five years I've been sick," said Jessica, looking glum but
not beaten. "My whole family is an organ donor now."
April
is National Donate Life Month. Last year, President Bush declared
the week of April 21 as National Organ and Tissue Donor Awareness
Week.
About 60 people receive a transplant every day in the United
States. But each day 15 die because no organs are available. There
are about 80,000 people in the country waiting for an organ
transplant.
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