Dance
Shines Light on Need for Organ Donation
By
Jason Hidalgo
Reprint courtesy of Reno Gazette-Journal
April
25, 2000
Anne Norris watches the closing moments of last year's performance of the
theatrical piece, "Dancing in the light," and sees an image of
her 13-year old daughter, Kristen. Enveloped by a warm ray of light,
Kristen's long golden hair shimmers as it twirls with each graceful
movement of her body, marking the culmination her youthful dreams.
The music stops, the crowd applauds and Norris is in tears.
On April 24, three years before the tribute performance Norris
watched, Kristen died from anaphylaxis, the victim of an allergic reaction
to something she consumed a few days earlier.
"She had a history of allergy to nuts," Norris said.
"She ordered something she normally had and they just didn't
happen to clean the blender well enough this time."
Kristen only took two sips of the drink before noticing a strange taste.
She slipped into a coma later that evening. After being
pronounced brain dead, Kristen became an organ donor.
"It was something we talked about before," Norris
said. "She said that if she ever died, then they can take
whatever they want because she wasn't going to need it anymore. Of
course, we never thought this would happen."
Kristen's contribution made an immediate impact, Norris said,
helping three people who desperately needed organ transplants - one of
whom was an 8-year child.
"One thing that kept (me and my husband) going the first
year (after Kristen's death), Norris said, "was knowing that
Kristen's organs saved this boy."
April is National Organ and Tissue Donor Awareness Month.
Spanish Springs resident Joe Stivers, 54, a heart transplant
recipient, says the impact organ donation has had on his life is simply
immeasurable.
"I would have never seen my son get married,"
Stivers said. "And I would have never seen my grandchildren be
born."
The impact of organ donation becomes even greater for younger
people.
Christine Grahm, 20, a University of Nevada, Reno student,
received her organ transplant when she was only 4.
"I wouldn't have experienced anything," Grahm said.
About 57 people receive an organ transplant each day. Another
13 people die daily, however, because not enough organs are available.
There were 69,057 patients on the United Network for Organ
Sharing's waiting list as of April 15 of this year. Kidneys top the
list for organs need at 44,885, followed by livers at 15,120.
The national average for organ donation is about 50 percent,
said Sandi Smith, regional supervisor for Sierra Eye and Tissue donor
Services. Northern Nevada's average is about 80 to 85 percent.
"Northern Nevada is a really tight-knit and caring
community," Smith said. "(Those figures) really speak
highly of us."
For the last three years, "Dancing in the Light" has served as
the finale for the "Shining Stars" benefit concerts.
Proceeds from the concert benefit programs for children in the
arts, which includes master classes featuring renowned professionals in
the art world. One of the recent guest teachers, for example, was
dancer Tony Coppola.
"Master classes are really expensive," Norris said.
"Normally, you have to go to San Francisco or Manhattan and pay the
teacher plus room and board. Students can take our classes for
free."
Norris, who has a background in the visual and performing arts, also
produces the concert as a way to remember Kristen, who had an affinity for
the arts, including dancing, acting, singing, and writing.
"It's a good way for people t get to know how Kristen was
and what she wanted to do," said Roseanna Peek, 17, one of the
piece's performers.
The concert is also a way to positively influence the lives of
donor families and at the same time raise awareness for organ donation.
"It's really emotional," said 16 year-old Amanda
Sharkey, another performer and Roseanne's best friend. "I know
we can touch those who loved (Kristen) and those who also lost a loved
one."
"Art is healing," Norris added. "It hold
up a mirror and gives you something to think about. Great art
changes people."
Norris' group recently performed at the California Transplant
Donor Network's Donor Family Recognition Ceremony. They also have
been invited to the National Kidney Foundation's National Donor
Recognition Ceremony, which is held in conjunction with the United States
Transplant Games on June 22 this year.
Meeting donor families can be a very powerful moment for both
sides, Norris said, particularly those directly involved in the organ
donation of a loved one.
"It's like you suddenly have an extended family,"
Norris said. "You can't even comprehend the emotion everyone
goes through."
Despite her tragic experience, not a trace of bitterness can
be found in Norris' voice as she retraces the events that led to her
daughter's death.
She describes the efforts of the paramedics and doctors who
worked on her daughter as "very heroic".
"The community really rallied around us," Norris
said. "I couldn't believe the support we got."
She admits the time after Kristen's death was very tough.
There were times she couldn't even spell her name. However,
Norris says she could always find comfort in the fact that Kristen was
able to spare other families the grief she had to go though.
Alfredo, the 8 year-old who received a kidney from Kristen,
actually had a twin brother with the same condition. There was only
one match for both of them - their father. "I couldn't even
imagine the emotion the father had to go through," Norris said,
"having to choose one son over the other."
Another recipient, Elise, had severe diabetes. After
receiving Kristen's kidney, her diabetes was corrected, Norris said, which
was just miraculous.
And one of the most satisfying things about the whole organ
donation process, Norris said, is the fact that part of Kristen still
lives throughout these different people.
Following Kristen's death, Norris feared her daughter would be
forgotten and that the magnificent spirit she created while she was still
alive would just vanish. "Now she's (physically and)
spiritually with these people," Norris said. "That to me
is just tremendous - they just got this incredible guardian angel.
"And I know that Alfredo, his family....and his future
children as well, will never forget Kristen."
|